Brain, spine & nervous system information Getting Organised Information for New Members Help

Links to Information About Chordoma

Please note that these links are for general information only.  Always consult your own doctor. The links will, for the most part, take you to other sites. They are sites suggested by members of this Group but independent of us unless otherwise specified.  

http://www2.massgeneral.org/chordoma/aboutchordoma.htm

American Academy of Orthopaedic Surgeons.

About Chordoma - emedicine

http://www.emedicine.com/radio/topic169.htm   

http://en.wikipedia.org/wiki/Chordoma

http://www.medscape.com/viewarticle/461100_6 Sacral chordoma

Endoscopic surgery for skull base chordoma (part of a Surgeon's professional website).

All about the anatomy of the clivus

Article about surgery for Cranial Chordoma 2001

Operative Management of Sacral Chordoma 2005

Spinal chordoma

Anatomy of the Sacrum

Chordome, en Français

Chordoma page from the Chordoma Foundation site

http://cancerguide.org/research.html Do your own online research  

 

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Proton Beam Therapy Links

    Proton Beam  Technology

http://www2.massgeneral.org/cancer/about/providers/radiation/proton/whatis.asp
What is Proton Beam Therapy? Includes a helpful "What to Expect" section.

http://www.proton-therapy.org   The National Association for Proton Therapy

    Proton Beam Treatment Centres in North America

http://www2.massgeneral.org/cancer/about/providers/radiation/proton/index.asp
Massachusetts General Hospital

http://www.protons.com  
Proton Therapy at Loma Linda University Medical Center, Loma Linda, California

http://iuhealthprotontherapy.org/
The Indiana University Health Proton Therapy Center (formerly Midwest Proton Radiotherapy Institute), Bloomington, Indiana

http://www.mdanderson.org/care_centers/radiationonco/ptc/    Houston, Texas

http://www.floridaproton.org/    Jacksonville, Florida

    Proton Beam Treatment Centres World Wide

http://ptcog.web.psi.ch/ptcentres.html   

PTCOG: Particle Therapy Co-Operative Group (Some sites are limited to certain areas, such as eyes.)

http://neurosurgery.mgh.harvard.edu/ProtonBeam/lnkprotn.htm Links from MGH with a world map

http://www.rptc.de   Munich, Germany

http://www.protontherapie-orsay.fr/  Orsay near Paris, France

http://radmed.web.psi.ch/asm/gantry/gantry_master.html   Switzerland

http://korea.net/news/news/newsView.asp?serial_no=20070409031 New in Korea

http://ptcog.web.psi.ch/newptcentres.html  Particle therapy facilities in a planning stage or under construction

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Chordoma Research Links

http://dceg.cancer.gov/geb/research/activeclinical/chordoma Familial study of chordoma:
The goals of this study are to identify the "chordoma" gene and study it to learn how changes in it can lead to the development of chordoma. To reach these goals, they need to find and study more families in which two or more blood relatives have been diagnosed with chordoma.

http://www.virtualtrials.com     
       Also an amazing resource for all sorts of information.

http://clinicaltrials.gov/ct2/results?term=chordoma&recr=Open
        Clinical trials, USA

http://www.ninds.nih.gov/health_and_medical/pubs/brain_tumor_hope_through_research.htm

http://www.tbts.org      
       Brain Tumour Research, Education and Support                    

http://www.chordomafoundation.org/home/index.aspx The Chordoma Foundation

http://www.btan.org   
Dedicated to finding a cure for primary brain tumors and to advancing the understanding of brain function as it relates to these tumors

http://www.quackwatch.org 
and
http://www.mdanderson.org/departments/CIMER/dIndex.cfm?pn=5AC57A83-0F8D-4A3F-B743A0CDF23F193C. 
Research on alternative therapies

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Links to Brain, Spinal Column and Nervous System Information

http://www.bbc.co.uk/science/humanbody/body/interactives/organs/brainmap/index.shtml  
Interactive brain tour

http://www.med.wayne.edu/diagradiology/Anatomy_Modules/axialpages/Home_Page.html  
More skull base

About the Spine

About the Nervous System

http://thebrain.mcgill.ca/flash/d/d_01/d_01_cr/d_01_cr_ana/d_01_cr_ana.html The Brain "top to bottom"

http://www.apparelyzed.com/spinalcord.html Spinal cord nerves

Reviewed June 17 2010

Contact the managers of the Chordoma Support Group Visit the Message Board

Our sincerest thanks to St Aidan's Anglican Church in Canada, who have lent us the web space for this page.

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