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Doctors with experience in Chordoma as reported by members of the Chordoma Support Group

This is a report from a survey conducted in 2009, which asked members of the Chordoma Support group to report on the doctors who performed their surgeries and followed up after. Inclusion on this list does not mean that the doctor is endorsed or recommended by the Chordoma Support Group and omission from this list only means that any doctor not listed here was not reported by the members of the group who took part in the survey. This report remains the property of the Chordoma Support Group, and may not be copied, reproduced or downloaded without the permission of the managers of the Chordoma Support Group. The list has been edited only for formatting purposes. No entries have been changed or omitted.

Where do you live?	Surgeries	Where was the first chordoma?	Please list the specialist(s) used. Neurosurgeons first	Please add other doctors here, with hospitals and contacts.
Woodbury Minneapolis/St Paul MN	2009	Clival chondrosarcoma	Dr Michael Link - Mayo	Dr Norbert Liebsch - Boston
St. Louis, Missouri, USA	39420	Cervical	Dr. Mark Varvares (ENT)	Dr. Howard Place (spinal reconstruction)
New York	2005, 2007 and 2008	Cervical	Dr. Sen St. Lukes Hospital NYC	Dr. Constantino, St. Lukes Hospital NYC
Martin, Tennessee	2007	Cervical	Dr. William Krauss - Mayo Clinic - Rochester, MN	Dr. Eric Moore - ENT - Mayo Clinic - Rochester, MN Dr. Marcus Fitzek - Radiation Oncologist - Proton Beam Radiation - MPRI - Bloomington, IN
New York City, NY USA	multiple, last 2008	Cervical	Dr Chandranath Sen	Dr Costantino St Lukes Dr Bilsky MSKCC Dr Yamada MSKCC Dr Liebsch MGH
Pennsylvania, USA	no surgery	Cervical	Ziya Gokaslan and Jean-Paul Wolinski Johns Hopkins	Lilia Loredo radiation oncology Loma Linda
California/Zurich		Cervical C23456	Dr. Jeszenszky Shculthess Klinik Dr Norbert Liebsch MGH
Michigan	2006	Cervical chondrosarcoma	Chandranath Sen Noel Perin Center for Cranial Base Surgery St. Luke's Roosevelt Hospital New York	Peter Constantino
Sacramento,Ca	2008	Clival	Dr.Sandeep Kumar (UCSF)	Dr.Blevins (ucsf) Dr,Liebsch (Mass General)
Bay Area (San Jose), California, USA	2002	Clival	Dr Lawrence Shuer, neurosurgeon, Stanford Hospital, Stanford, CA. USA	Dr Hsieh, Pain Management Specialist, San Jose, CA, USA Dr Jadali, Pain Management Specialist, San Jose, CA, USA Dr Katznelson, neuroendocrinologist, Stanford, CA, USA
South Bend, IN, USA	2009	Clival	Dr. Shah, IU Hospital, Indianapolis, IN, USA	Dr. Allen Thornton, MRPI, Bloomington, IN
Saudi Arabia ,Jordan	2008	Clival	Dr.Sami Majdeed I.N.I - HANNOVER GERMANY	DR.SHNIEDER P.S.I - VILLIGEN NEAR ZURICH SWITZERLAND.
Atlanta, GA	2006	Clival	Dr. Jeffrey Olson, Emory Dr. Amin Kassam, UPMC, MINC	Robert Marcus, Radiology, Emory
Mumbai, India	2000, 2003, 2005(2),2009(2)	Clival	Dr. Atul Goel
Visalia, California, USA	1994	Clival	Dr. Keith Black
Long Island, New York USA	2004	Clival	Dr. Sekhar, Harbor View Medical, Seattle WA Dr. Ted Schwartz, NY Presb. NYC Dr. N. Liebsch, Mass General Boston MA	Dr. V. Anand, ENT NY Presb., NYC Dr. Chandrasekhar, ENT Mt. Sinai, NYC Dr. R. Carvajal, Memorial Sloan NYC
Alabama	2002	Clival	Dr. Laligam N. Sekhar M.D. F.A.C.S. Director, Skull Base surgery Department of Neurology Surgery University of Washington, Harborview Medical Center Seattle, WA 98104 President-Elect, World Federation of Skull Base Societies 1-206-744-9331	Dr. Franco DeMonte M.D. MD Anderson Medical Center Neurosurgery Department Department of Skull Base Surgery Houston, TX Dr. Robert Rostomily University of Washington Dr. Michael McDermott (UCSF) Dr. Salim Abdulraf (St. Louis University) Dr. Ossama Al Mefty (University of Arkansas) Dr. Marcelo Vilela Harborview Medical Center a specialist in sacral chordomas
San Jose, CA, USA	2002	Clival	Dr Lawrence Shuer, Stanford Hospital, Stanford, CA	Dr Jadali, pain management specialist, Los Gatos, CA Dr Bhattacharya, Neurologist, Fremont, CA Dr Hsieh, pain management, San Jose, CA Dr Katznelson, neuroendocrinologist, Stanford Hospital, Stanford CA
Charlotte area North Carolina	2003, 2009	Clival	Dr. Asher
Chicago, Illinois U.S.	1999, 2006, 2007	Clival	Dr. Thomas Origitano Loyola University Medical Center, Chgo. Dr. Amin Kassam St. Johns Santa Monica, CA. Dr. Daniel Prevedelo University of Pittsburgh Medical Center, PA.	Dr. Petruzzelli, Rush University Medical Center, Dr Carl Snyderman University of Pittsburgh Medical Center
Phoenix, AZ	2004	Clival	Dr. William White - neurosurgeon Dr Robert F. Spetzler - neurosurgeon Dr William Shapiro - neurologist Dr David Brachman - Radiation Oncologist	Dr. Ravi Agarwal - ENT - Westside Ear, Nose & Throat
Bloomington, IL	2001, 2002	Clival	Dr Al-Mefty	Dr Liebsch Mass General, Boston, Mass
48018 Faenza Italy	2006	Clival	Dr.Maria Teresa Nasi-neurosurgeon hospital Bufalini Cesena Italy	Dr.Ralf Schneider PSI Villigen Zurich Swiss
Ontario, Canada	2002	Clival	Dr Michael Cusimano, St Michael's Hospital Toronto	Dr Booth, Endocrinologist,St Michael's Hospital Toronto   Dr Marchetti, Neurologist, Milton, Ontario
Ludlow, Vermont USA	2006	Clival	Dr. Theodore Schwartz New York Columbia/Cornell Hospital  212-746-5620	Dr. Vijay Anand, ENT 772 Park Ave., NYC 212-452-3005 Dr. Norbert Liebsch, Mass General 617-726-0923 Proton Beam Radiation Therapy
Scott AFB. Illinois, USA	2003	Clival	Dr. Frank P. K. Hsu M.D. Specialty: Neurosurgery, Surgery, Spine 25455 Barton Front Road Suite 108-A Loma Linda, California 92354 (909) 558-6388	John Youngyoo Kim, M.D. (Still with Loma Linda, but the address is slightly different) 11370 Anderson Street 1895 Orange Tree Lane, Suite 102 Redlands, California 92374
Israel	2002	Clival	Dr. Sen Chandranath
Colorado Springs, Colorado	1999	Clival	Kevin O. Lillehei, MD Director of Neuro-Oncology Program University of Colorado Health Sciences Center, Denver, CO	Dr. Kerr, endocrinology University of Colorado Health Sciences Center Denver, CO Dr Liebsch Proton/Photon beam Massachusetts General, Boston
Mapleton, Utah, USA	2003	Clival	Dr. Osoma Al-Mefty, University of Arkansas Medical School	Dr. Norbert Leibsch, Mass General
Virginia	2008	Clival	Dr. Alan Friedman	Duke University
Carrollton, Ga USA	1995	head	Michael L. Goodman now at Sacred Heart Medical Center Pensacola, Fl	Wilbur Baird Piedmont Hospital Atlanta, Ga
Manila, Philippines	2006	Mesenchymal Chondrosarcoma skull base	Dr. Chandranath Sen Dr. Norbert Liebsch	Dr. Manuel Mariano (Neurosurgeon - Philippines) Dr. Gimenez (Neurosurgeon - Philippines)
Riverside County, California	2007	Sacrum	Dr Dean Chou, UCSF Medical Center	Dr Lilia Lorado, Loma LInda Medical Center
Porto Alegre, RS, Brazil.	2001, 2005	Sacrum	Ademar Lopes Sao Paulo city.	Hospital A.C.Camargo in Sao Paulo city.
Emmett, Idaho, USA	2008	Sacrum	Dr. Lor Randall University of Utah Hospital/Clinic Salt Lake City Utah osteosarcoma specialty
Charleston South Carolina	1995	Sacrum	Dr Sinal Patel S.C Medical University	Dr Norbert Leibsch Mass General for Radiation
Dubai (UNITED ARAB EMIRATES)	2008	Sacrum	Dr. Rana Patir, Sir Ganga Ram Hospital - New Delhi (India) Dr. Shankar Acharya, Sir Ganga Ram Hospital - New Delhi	Dr. Zia Gokaslan - John HopkinsDr Liebsch Proton beam Massachusetts General, Boston.
Houston, Texas, United States	2002	Sacrum	Dr. Lawrence Rhines M.D. Anderson Cancer Center Houston, TX
Carnelian Bay Calif.	2007	Sacrum	Michael H Song M.D., Reno Nv.
Boston, MA, USA	2009	Sacrum	Dr. Jean-Paul Wolinsky Johns Hopkins Hosptial Baltimore, MD	Dr. Norbert Leibsch Oncologist Mass General Hospital Boston, MA,
Levallois, France	2009	Sacrum	Dr Gilles Missenard Clinique Arago Paris 75014
Italy	1993	Sacrum	Dr. Demsey Springfied MGH Boston, USA Dr. Suit MGH Boston,
Oregon, USA	2004	Sacrum	Trent L. Tredway, M.D. - Neurosurgeon - University of Washington Medical Center	James B. Hayden - Orthopaedics Rehabilitation, Cancer and Blood Disorders - Oregon Health Science University
Bay Area, California, USA	2007	Sacrum	Dr. Stephen Granelli, Surgeon Kaiser Permanente, Oakland, CA	Dr. Dean Chou, Spinal Surgeon, University of California, San Francisco
Raleigh, NC	2007	Sacrum/skull/brain	Dr. Allan Friedman - Duke University Hospital, Durham NC
Glossop, UK	2009	skull	Mr Andrew King	Mr Simon Freemon
Highlands Ranch, Colorado	2003	skull base chondrosarcoma	Dr. Frederick G. Barker Neurosurgeon Massachusetts General Hospital Boston, Massachusetts	Dr. Michael McKenna Otology and Neurotology Massachusetts Eye Ear Infirmary Boston, Massachusetts Dr. Norbert Liebsch Radiation Oncologist Massachusetts General Hospital Boston, MA
Cincinnati, Ohio, USA	2002	Spine	Dr. Set Shahbabian, Neurosurgeon - Good Samaritan Hospital, Cincinnati, Ohio	Oncologist - Dr. Margie Gerena-Lewis, Universiry Hospital/Barrett Center, Cincinnati, Ohio
Manchester NH	2009	Spine	Dr Swabb, Dr Hornicheck	Mass General Boston, MGH proton center Boston mass, Dr yen-lin chen
Germany	2007	Spine	Prof. Wolfgang Draf Dept. of ENT Head and Neck Surgery Int. Neuroscience Institute Rudolf-Pichlmayr-Strasse 4 D 30625 Hannover Tel: +49 511 270 92 405 Fax: +49 511 270 92 407 draf@ini-hannover.de	Prof. Jurgen Harms Medical Director, Orthopaedics and Spinal Column Surgery Klinikum Karlsbad-Langensteinbach Karlsbad, Germany Guttmannstraße 1 D-76307 Karlsbad Germany Phone: +49 (0) 7202 61 38 92 Fax: +49 (0) 7202 61 61 66
Cleveland,Ohio	Sept 2009 x 4	Spine	Dr. Jean -Paul Wolinsky, Johns Hopkins Hospital
Cincinnati, Ohio	2003	Spine	Dr. William D. Tobler Mayfied Clinic  Phone 513-569-5223 2123 Auburn Avenue #441 Cincinnati, Ohio 45219	Dr. Robert E. Albright Neuro-Oncology Christ Cancer Center 513-585-2323 2139 Auburn Avenue Cincinnati, Ohio 45219 Dr. John C. Breneman IMRT Radiation 7710 University Ct. 513-475-7777 West Chester, Ohio 45069 Dr. M. Gregory Balko Neuro-Pathology St. Elizabeth Hospital 859-301-3904 1 Medical Village Drive Edgewood, Kentucky 41017
Beaumont, Texas U.S.A.	2001	Spine	Dr. Ziya L. Gokasian..John Hopkins	Dr. W. Rex Marco..University of Texas
Florida	2008	Spine	Dr. Joseph Schwab, Orthopedic Spine/Oncology Massachusetts General Hospital, Boston, MA	Dr. Norbert Liebsch, Radiation Oncology, Massachusetts General Hospital, Boston, MA Dr. Francis Hornicek, Orthopedic Oncology, Massachusetts General Hospital, Boston, MA
West Bloomfield, Michigan	2007	Spine	Dr Gokaslan	Dr Wolinski . Johns Hopkin Baltimore
Weston, FL, USA	2007, 2009	Spine	Neurosurgeons: Dr Steven Vanni, Miami, Dr Mark Bilsky, NY,	Radiology, Dr Liebsch, Dr Yamada, NY, Oncologists: Dr Marie Luise Keohan, NY, Dr Gustavo Ferrnandez, Miami. GI Dr Amy Ludwig-Miller, NY.
Attleboro, Massachusetts, USA	2002	Spine/mesenchymal chondrosarcoma	Dr. Liliana Goumnerova, Children's Hospital, Boston	Dr. Holcomb Grier, Jimmy Fund Clinic, Dana-Farber Cancer Inst. Dr Liebsch Proton beam Massachusetts General, Boston